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Adalia Rose Williams, a social media star, died on Wednesday. She was 15.
“On January 12, 2022, at 7 pm, Adalia Rose Williams left this world. She entered it quietly, but her life was far from unnoticed. She touched millions of people and left the biggest mark on anyone who knows her, writes in a post on her Facebook and Instagram accounts.
She suffered from the rare genetic disease progeria. Affected children usually appear normal at birth and in early childhood, but then grow more slowly than other children and do not gain weight at the expected rate.They develop a characteristic facial appearance, including bulging eyes, a thin nose with pointed tip, thin lips, small chin and protruding ears.
Progeria or Hutchinson-Guilford syndrome also causes hair loss (alopecia), skin aging, joint abnormalities and loss of fat under the skin (subcutaneous adipose tissue) .This condition does not affect the intellectually developed is either the development of motor skills such as sitting, standing and walking.
There are currently only about 400 children in the world living with progeria, according to the National Organization for Rare Diseases.
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