'Princess' Lara with rare disease without supportive therapies at Braga hospital

Lara was diagnosed in 2019 at Braga Hospital with a rare, serious, degenerative and progressive disease,

That same year, she was referred to therapies, physiotherapy, speech therapy and occupational therapy, each with 30 minutes, a short time and once a week.

Communiqué from the full support page for Lara

“In 2020 we managed to get Lara to go to a regenerative clinic in Spain, we communicated in the service that we would be absent for 3 months, we suspended the therapies to resume them when we returned.
Unfortunately this did not happen because we were only entitled to occupational therapy because we were told there were no vacancies.
And so we continued until the 10th of this month, 2022, and now we are waiting for a vacancy for all therapies.

Fortunately, with a lot of physical, financial and emotional effort, we have managed to pay all therapy s at Clínica Saluslive, daily therapies, physiotherapy, hydrotherapy, speech therapy and occupational therapy and what if we can’t?

In a serious, rare, degenerative and progressive disease in a child, the Braga hospital has no answer in terms of therapies?

Like Lara, there are many children in the same situation, waiting for therapies, prostheses, orthotics and many other orthopedic equipment , many just waiting for a simple subscription to have access to what they need.
Lara has been waiting since September 2021 for a foot orthosis, simply embarrassing.
I also knew of people who are hospitalized waiting for orthopedic material that costs much less than the hospital daily, this is absurd what they can do with our tax money.

Human life is valuable, you don’t play with anyone’s health. Lara has rights that are not being respected”, writes the support page for the girl who needs help.

Comments

)